| 1. IDENTIFICATION & BASIC DESCRIPTION |
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Cohort name
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UK Biobank
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Country
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Please provide any other information on the cohort location/s if needed
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National survey, England and Wales
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Name
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Rory Collins
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Institution
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University of Oxford
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Email
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rory.collins@ndph.ox.ac.uk
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Website
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- https://www.ukbiobank.ac.uk/
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Name of committee
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Multiple
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Or provide website
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- https://www.ukbiobank.ac.uk/key-documents/
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Data access policy (briefly describe)
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http://www.ukbiobank.ac.uk/wp-content/uploads/2012/09/Access-Procedures-2011.pdf
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Upload files
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Main aim of cohort, please briefly describe the main objectives of the cohort
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This is a general population all-purpose cohort of adults, which includes some occupational data.
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Study design (please select as many as appropriate)
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Source population (please select as many as appropriate)
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- General population: National
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Comparators (please select as many as appropriate)
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- Internal study population
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Enrollment
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Completed
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Age range at entry (main cohort)
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| Minimum |
Maximum |
Mean |
| 40 |
69 |
55 |
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Men at enrollment
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250,000
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Women at enrollment
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250,000
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Children (<18 years) at enrollment
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0
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Men at last follow-up
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250,000
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Women at last follow-up
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250,000
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Participation rate at enrollment (if known)
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5
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Comments
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Access is open to all - apply through through the website - there is no need to contact the Principal Investigator
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| 2. OUTCOME FOLLOW-UP |
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Type of data for outcome follow-up (please select as many as appropriate)
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- Active (contact with participants)
- Death certificate
- Disease incidence records
- Hospital / physician diagnoses
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Active (contact with participants) (specify)
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Death certificate (specify)
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Disease incidence records (specify)
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- Routine linkage, e.g. to cancer registries
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Hospital / Physician diagnoses (specify)
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- Linkage with hospital admissions
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First follow-up period (provide year)
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2006
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Last follow-up period (provide year)
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ongoing
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Number of follow-ups after baseline (provide number)
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500,000
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Participation at last follow-up (if known)
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100
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Comments
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Most follow-up is routine record linkage and is therefore close to 100%
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| 3. OCCUPATIONAL EXPOSURES |
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Source of exposure data collected (please select as many as appropriate)
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- Questionnaire, Personal (Self-reporting or interview)
- Questionnaire, Personal (Occupational/industry modules)
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Occupational history/time frame
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Lifetime
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Occupational coding performed
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No
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| 4. OUTCOMES EVALUATED |
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Baseline - type of outcome data collected (select more than one if applicable)
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- Biomarker (specify)
- Clinical/functional evaluation, e.g. spirometry, ECGs (specify)
- Death certificates
- Registry-based
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Specify: Clinical/functional evaluation, e.g. spirometry, ECGs
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Many
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Specify: Biomarker
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Many
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Registry-based
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Follow-up - type of outcome data collected (select more than one if applicable)
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- Death certificates
- Medical records
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Outcome type (please select as many as appropriate)
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Other health related outcomes
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| 5. BIOLOGICAL SAMPLES & ANALYSIS |
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Biological samples collected
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Biological processing
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| 6. Other Information |
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Possibility for linkage to data registries/data enrichment via data linkage
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- Cancer incidence
- Hospital discharge
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Please describe plans that are funded or most likely to be funded
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The cohort is gathering more information all of the time, particularly with record linkage
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