Date of filling in this questionnaire or last update: 07/05/2021
1. IDENTIFICATION & BASIC DESCRIPTION
Cohort name
Australian Mesothelioma Registry
Country
  • Australia
Name
Prof Malcolm Sim
Institution
Monash University
Email
malcolm.sim@monash.edu
Personal website
https://research.monash.edu/en/persons/malcolm-sim
Do you want to add another Principal Investigator of the Cohort
  • Add another Principal Investigator of the cohort
Name
Dr Geza Benke
Institution
Monash University
Email
geza.benke@monash.edu
Personal website
https://research.monash.edu/en/persons/geza-benke
Do you want to add another Principal Investigator of the Cohort
  • Add another Principal Investigator of the cohort
Name
Dr Ewan MacFarlane
Institution
Monash University
Email
Ewan.MacFarlane@monash.edu
Personal website
https://research.monash.edu/en/persons/ewan-macfarlane
Website
  • https://www.mesothelioma-australia.com/about-amr/what-are-our-aims
  • https://research.monash.edu/en/projects/australian-mesothelioma-registry-2
Name of committee
Monash University Human Research Ethics Committee, NSW Population and Health Services Research Ethics Committee (NSW PHSREC), Cancer Council Victoria, Human Research Ethics Committee (HREC), Queensland Health, Health and Medical Research HREC,
Or provide website
  • https://www.mesothelioma-australia.com/publications-and-data/publications
Contact Principal Investigator (name)
Prof Malcolm Sim
Upload files
Participation in pooled analyses
  • The cohort is potentially interested in participating in pooled analyses of (European) occupational cohort studies (note pooled analyses also includes remote decentralized analyses that would not require any transfer of primary data as well as meta-analyses).
Study design (please select as many as appropriate)
  • Prospective cohort
Source population (please select as many as appropriate)
  • Hospital / patient-based
Comparators (please select as many as appropriate)
  • External comparison of workers with other exposure
  • External study population (includes SMR/SIR studies)
Inclusion criteria
Each state and territory cancer registry provides the AMR with information about each person diagnosed with mesothelioma on or after 1st July 2010 in Australia. People who were diagnosed with mesothelioma can also self-notify to the AMR.
Enrollment
Ongoing
Men at last follow-up
2391
Women at last follow-up
578
2. OUTCOME FOLLOW-UP
Type of data for outcome follow-up (please select as many as appropriate)
  • Disease incidence records
Disease incidence records (specify)
  • When a notification of a mesothelioma diagnosis is made to the AMR, the relevant state or territory cancer registry will approach the patient's doctor to obtain their advice on whether their patient meets various eligibility criteria. The criteria include confirmation of mesothelioma diagnosis on or after July 1 2010 and that they are well enough to be contacted about their exposure to asbestos. If eligible, the registry then contacts the patient and sends them a Patient Information Pack which includes a Patient Consent Form and the Postal Questionnaire for them to complete at home.
First follow-up period (provide year)
10
3. OCCUPATIONAL EXPOSURES
Source of exposure data collected (please select as many as appropriate)
  • Questionnaire, Personal (Self-reporting or interview)
  • Questionnaire, Personal (Occupational/industry modules)
  • Job-employment records
  • Registry-based
Occupational history/time frame
Lifetime
Occupational coding performed
No
Types of exposure measurements
  • Workplace sampling
Methods for exposure assessment (please select as many as appropriate)
  • Expert assessment
  • Job Exposure Matrix
  • AsbJEM (Australia)
Main categories
  • Other (specify)
Main categories | Other | Specify: Other
Asbestos
4. OUTCOMES EVALUATED
Baseline - type of outcome data collected (select more than one if applicable)
  • Questionnaire, individual (self-recording or interview)
Follow-up - type of outcome data collected (select more than one if applicable)
  • Questionnaire, individual (self-recording or interview)
  • Registry-based
Registry-based
  • Disease specific clinical database
Outcome type (please select as many as appropriate)
  • Morbidity
Diagnostic groups based on ICD10
  • C + D Neoplasms
C + D Neoplasms
  • Mesothelioma
Other health related outcomes
  • Lifestyle change
  • Quality of life/wellbeing
  • Work participation
6. Other Information
  • Alcohol
  • Anthropometry
  • Demographics
  • Diet
  • Education
  • Environmental, air pollution
  • Medical history
  • Physical exercise
  • Residential history
  • Socioeconomic status
  • Smoking
Possibility for linkage to data registries/data enrichment via data linkage
  • Cancer incidence
  • Mortality register