Date of filling in this questionnaire or last update: 20/05/2020
1. IDENTIFICATION & BASIC DESCRIPTION
Cohort name
  Epidemiology of Chronic Diseases Cohort (EPIDOC)
Country
 

  • Portugal

Please provide any other information on the cohort location/s if needed
  CEDOC I, Epidoc Unit, Faculdade de Ciências Médicas, Campus Sant’Ana, Pólo de Investigação, NMS, UNL, Edifício Amarelo, Rua do Instituto Bacterológico, nº5, 1150-082 Lisboa, Portugal
Name
  Helena Canhão
Institution
  CEDOC I, Epidoc Unit, NMS
Email
  helena.canhao@nms.unl.pt
Do you want to add another Principal Investigator of the Cohort
 

  • Add another Principal Investigator of the cohort

Name
  Ana Rodrigues
Institution
  CEDOC I, Epidoc Unit, NMS
Email
  anamfrodrigues@gmail.com
Do you want to add another Principal Investigator of the Cohort
 

  • Add another Principal Investigator of the cohort

Name
  Jaime Branco
Institution
  CEDOC I, Epidoc Unit, NMS
Email
  jaime.branco@nms.unl.pt
Website
 

  • http://cedoc.unl.pt/epidoc-unit/

Name of committee
  National Committee for Data Protection and NOVA Medical School Ethics Committee.
Upload files
 

Or provide website
 

  • http://cedoc.unl.pt/epidoc-unit/

Contact Principal Investigator (name)
  Helena Canhão
Data access policy (briefly describe)
  Data from our cohorts and projects are available for researchers by submitting research projects to the scientific comitee
Participation in pooled analyses
 

  • The cohort is potentially interested in participating in pooled analyses of (European) occupational cohort studies (note pooled analyses also includes remote decentralized analyses that would not require any transfer of primary data as well as meta-analyses).

Main aim of cohort, please briefly describe the main objectives of the cohort
  EpiDoC cohort was design to study health determinants and outcomes, chronic non- communicable diseases and their impact in health resources consumption. EpiDoC cohort is an ongoing project that started with EpiDoC 1 study (EpiReumaPt) and has already two other assessments of cross-sectional evaluations, performed to the same subjects, called EpiDoC 2 (CoReumaPt ) and EpiDoC 3 (Saúde.Come - Promoting Food Security) studies. EpiDoC Cohort started with EpiDoC 1, which enrolled 10,661 subjects. The main objective of EpiDoC 1 study (EpiReumaPt)(3) was to determine rheumatic and musculoskeletal diseases (RMD) prevalence and its burden in Portugal. Interviews and observations took place between September 2011 and December 2013. EpiDoC 2 study (CoReumaPt) was done between March 2013 and July 2015. A structured questionnaire was applied through phone call interviews to the same 10,153 eligible participants of EpiDoC 1 study (EpiReumaPt) who consented to be re-contacted for follow-up. This study systematically collected and analyzed longitudinal data (the nuclear questionnaire) as well as allowed adding new questions regarding life styles (i.e food patterns), health innovation and social interactions. This study included 7,591 participants, representative of the adult Portuguese population. EpiDoC 3 study (Saúde.Come - Promoting Food Security) was done between September 2015 and July 2016. This study continued to systematically collect and analyze longitudinal data (the nuclear questionnaire) and also new data were collected to characterize household food insecurity, its determinants and its health consequences in Portugal. In the end, 5653 participants completed the study through phone call interviews.
Study design (please select as many as appropriate)
 

  • Prospective cohort

Source population (please select as many as appropriate)
 

  • General population: National

Comparators (please select as many as appropriate)
 

  • Internal study population
  • External study population (includes SMR/SIR studies)

Inclusion criteria
  Cohort study including a nationally representative sample of adults (≥18 years old) who were non-institutionalized and living in private households in Portugal Mainland and Islands (Azores and Madeira)
Exclusion criteria
  residents in hospitals, nursing homes, military institutions or prisons, and individuals unable to speak Portuguese or unable to complete the questionnaire, despite being aided.
Enrollment
  Ongoing
Age range at entry (main cohort)
 

Minimum Maximum Mean
18 102 52.8

Age range at entry (subcohort)
 

Minimum Maximum Mean Please describe
19 102 54.5 EpiDoC2 study (CoReumaPT)
20 104 55.3 EpiDoC 3 study (Saúde.Come - Promoting Food Security)

Men at enrollment
  4110
Women at enrollment
  6551
Men at last follow-up
  2046
Women at last follow-up
  3607
2. OUTCOME FOLLOW-UP
Type of data for outcome follow-up (please select as many as appropriate)
 

  • Active (contact with participants)

Active (contact with participants) (specify)
 

  • Phone interview

First follow-up period (provide year)
  2013-2015
Last follow-up period (provide year)
  2015-2016
Number of follow-ups after baseline (provide number)
  2
Participation at last follow-up (if known)
  53.03
3. OCCUPATIONAL EXPOSURES
Source of exposure data collected (please select as many as appropriate)
 

  • Questionnaire, Personal (Self-reporting or interview)

Occupational history/time frame
  Current, at enrollment
Occupational coding performed
  Yes
Methods for exposure assessment (please select as many as appropriate)
 

  • Self-report

4. OUTCOMES EVALUATED
Baseline - type of outcome data collected (select more than one if applicable)
 

  • Questionnaire, individual (self-recording or interview)

Follow-up - type of outcome data collected (select more than one if applicable)
 

  • Questionnaire, individual (self-recording or interview)

Outcome type (please select as many as appropriate)
 

  • Morbidity
  • Disability

Other health related outcomes
 

  • Lifestyle change
  • Quality of life/wellbeing
  • Sleep
  • Work participation

5. BIOLOGICAL SAMPLES & ANALYSIS
Biological samples collected
 

  • Blood
  • Other

Specify: Other
  Serum
Biological processing
 

  • DNA

Genetic and other lab analyses
 

  • Other (specify)

Specify: Other
  Peripheral BMD (wrist), X-Ray of the affected joint (hand, hip, knee) and Calcaneus and wrist BMA
6. Other Information
 

  • Alcohol
  • Anthropometry
  • Demographics
  • Diet
  • Education
  • Medical history
  • Personality
  • Physical exercise
  • Socioeconomic status
  • Smoking