Date of filling in this questionnaire or last update: 07/04/2021
1. IDENTIFICATION & BASIC DESCRIPTION
Cohort name
  The Queensland Coal Mine Workers’ Cancer and Mortality Study
Country
 

  • Australia

Name
  Deborah Glass
Institution
  Monash University
Email
  deborah.glass@monash.edu
Personal website
  https://research.monash.edu/en/persons/deborah-glass
Name
  Malcolm Sim
Institution
  Monash University
Email
  malcolm.sim@monash.edu
Personal website
  https://research.monash.edu/en/persons/malcolm-sim
Website
 

  • https://www.monash.edu/medicine/sphpm/coeh/research/queensland-coal-mine-workers-cancer-and-mortality-study

Name of committee
  Monash University Human Research Ethics Committee
Upload files
 

Contact Principal Investigator (name)
  Associate Professor Deborah Glass
Data access policy (briefly describe)
  The primary data source used to ascertain deaths in the cohort will be the AIHW National Death Index (NDI) which holds death data from all states and territories since 1980. The NDI records are updated with fact and date of death monthly, and cause of death data are updated annually. The primary data source used to ascertain cancer cases in the cohort will be the Australian Cancer Database (ACD), also held by AIHW. All cancers, except non-melanotic skin cancers, are legally notifiable in Australia. The AIHW holds complete data on cancer cases occurring since 1982.
Participation in pooled analyses
 

  • The cohort is potentially interested in participating in pooled analyses of (European) occupational cohort studies (note pooled analyses also includes remote decentralized analyses that would not require any transfer of primary data as well as meta-analyses).

Main aim of cohort, please briefly describe the main objectives of the cohort
  The primary aim of this project is to identify the risk of cancer incidence and mortality coal mine workers in Queensland to reduce the future burden of cancer and mortality in this large cohort.
Study design (please select as many as appropriate)
 

  • Retrospective cohort

Source population (please select as many as appropriate)
 

  • Industry / occupation-based

Comparators (please select as many as appropriate)
 

  • Internal study population
  • External study population (includes SMR/SIR studies)

Inclusion criteria
  The cohort will include- all coal mine workers with at least one health assessment available from: • All coal mining sectors in Queensland, including o underground mines, o open-cut mines, o coal handling and preparation plants • current coal mine workers, • retired coal mine workers and • former coal mine workers.
Exclusion criteria
  No exclusion criteria. In sensitivity analyses, we may exclude coal mine workers with only one medical assessment as they will have worked in the mines for less than five years and could have been employed for less than one year.
Enrollment
  Completed
Age range at entry (main cohort)
 

Minimum Maximum Mean
18

Age range at entry (subcohort)
 

Minimum Maximum Mean Please describe
18

Men at enrollment
  161448
Women at enrollment
  18852
Children (<18 years) at enrollment
  0
2. OUTCOME FOLLOW-UP
Type of data for outcome follow-up (please select as many as appropriate)
 

  • Death certificate
  • Disease incidence records

Death certificate (specify)
 

  • National Death Index (NDI)

Disease incidence records (specify)
 

  • Australian Cancer Database (ACD)

First follow-up period (provide year)
  1982
Last follow-up period (provide year)
  2020
Number of follow-ups after baseline (provide number)
  After 5 years
3. OCCUPATIONAL EXPOSURES
Source of exposure data collected (please select as many as appropriate)
 

  • Questionnaire, Personal (Self-reporting or interview)
  • Industry-based questionnaire
  • Job-employment records
  • Job calendar

Occupational history/time frame
  Follow-up period
Occupational coding performed
  No
Industry (specify coding system used)
 

  • Coal mine industry

Methods for exposure assessment (please select as many as appropriate)
 

  • Expert assessment

Main categories
 

  • Dusts and fibres
  • Physical agents

Dusts and fibres | Inorganic dusts
 

  • Coal dust
  • Quartz (quartz or crystalline silica containing dusts)
  • Silicates

4. OUTCOMES EVALUATED
Baseline - type of outcome data collected (select more than one if applicable)
 

  • Death certificates
  • Medical records
  • Questionnaire, individual (self-recording or interview)

Follow-up - type of outcome data collected (select more than one if applicable)
 

  • Death certificates
  • Medical records
  • Questionnaire, individual (self-recording or interview)

Outcome type (please select as many as appropriate)
 

  • Mortality
  • Morbidity

Diagnostic groups based on ICD10
 

  • C + D Neoplasms
  • I Cerebrovascular diseases
  • J Respiratory disease
  • K Hernia, colon and intestine disease

C + D Neoplasms
 

  • Benign neoplasm
  • Carcinoma in situ
  • Leukemia
  • Malignant neoplasms gastro intes. system including liver, gall bladder, pancreas
  • Malignant neoplasm lung
  • Other malignant neoplasm of respiratory and intrathoracic organs, heart, pleura
  • Melanoma and other malignant neoplasms of skin
  • Neoplasms connective and soft tissue including nerves
  • Malignant neoplasm of breast
  • Malignant neoplasms, females gynecological
  • Malignant neoplasms of male genital organs
  • Malignant neoplasm of urinary tract and kidney
  • Malignant neoplasms of eye, brain and other parts of central nervous system
  • Malignant neoplasms of thyroid and other endocrine glands
  • Malignant neoplasm without specification of site including excl. leukemia

J Respiratory disease
 

  • Chronic Bronchitis
  • Chronic obstructive pulmonary disease (COPD)
  • Pneumoconiosis
  • Pneumothorax

6. Other Information
 

  • Alcohol
  • Demographics
  • Education
  • Medical history
  • Residential history
  • Socioeconomic status
  • Smoking

Possibility for linkage to data registries/data enrichment via data linkage
 

  • Cancer incidence
  • Mortality register