2020

1. IDENTIFICATION & BASIC DESCRIPTION Cohort name   Australian Mesothelioma Registry Country   Australia Name   Prof Malcolm Sim Institution   Monash University Email   malcolm.sim@monash.edu Personal website   https://research.monash.edu/en/persons/malcolm-sim Do you want to add another Principal Investigator of the Cohort   Add another Principal Investigator of the cohort Name   Dr Geza Benke Institution   Monash University Email   geza.benke@monash.edu Personal website   https://research.monash.edu/en/persons/geza-benke Do you want to add another Principal Investigator of the Cohort   Add another Principal Investigator of the cohort Name   Dr Ewan MacFarlane Institution   Monash University Email   Ewan.MacFarlane@monash.edu Personal website   https://research.monash.edu/en/persons/ewan-macfarlane Website   https://www.mesothelioma-australia.com/about-amr/what-are-our-aims https://research.monash.edu/en/projects/australian-mesothelioma-registry-2 Name of committee   Monash University Human Research Ethics Committee, NSW Population and Health Services Research Ethics Committee (NSW PHSREC), Cancer Council Victoria, Human Research Ethics Committee (HREC), Queensland Health, Health and Medical Research HREC, Or provide website   https://www.mesothelioma-australia.com/publications-and-data/publications Contact Principal Investigator (name)   Prof Malcolm Sim Upload files   amr-data-access-policy.pdf Participation in pooled analyses   The cohort is potentially interested in participating in pooled analyses of (European) occupational cohort studies (note pooled analyses also includes remote decentralized analyses that would not require any transfer of primary data as well as meta-analyses). Study design (please select as many as appropriate)   Prospective cohort Source population (please select as many as appropriate)   Hospital / patient-based Comparators (please select as many as appropriate)   External comparison of workers with other exposure External study population (includes SMR/SIR studies) Inclusion criteria   Each state and territory cancer registry provides the AMR with information about each person diagnosed with mesothelioma on or after 1st July 2010 in Australia. People who were diagnosed with mesothelioma can also self-notify to the AMR. Enrollment   Ongoing Men at last follow-up   2391 Women at last follow-up   578 2. OUTCOME FOLLOW-UP Type of data for outcome follow-up (please select as many as appropriate)   Disease incidence records Disease incidence records (specify)   When a notification of a mesothelioma diagnosis is made to the AMR, the relevant state or territory cancer registry will approach the patient's doctor to obtain their advice on whether their patient meets various eligibility criteria. The criteria include confirmation of mesothelioma diagnosis on or after July 1 2010 and that they are well enough to be contacted about their exposure to asbestos. If eligible, the registry then contacts the patient and sends them a Patient Information Pack which includes a Patient Consent Form and the Postal Questionnaire for them to complete at home. First follow-up period (provide year)   10 3. OCCUPATIONAL EXPOSURES Source of exposure data collected (please select as many as appropriate)   Questionnaire, Personal (Self-reporting or interview) Questionnaire, Personal (Occupational/industry modules) Job-employment records Registry-based Occupational history/time frame   Lifetime Occupational coding performed   No Types of exposure measurements   Workplace sampling Methods for exposure assessment (please select as many as appropriate)   Expert assessment Job Exposure Matrix   AsbJEM (Australia) Main categories   Other (specify) Main categories | Other | Specify: Other   Asbestos 4. OUTCOMES EVALUATED Baseline - type of outcome data collected (select more than one if applicable)   Questionnaire, individual (self-recording or interview) Follow-up - type of outcome data collected (select more than one if applicable)   Questionnaire, individual (self-recording or interview) Registry-based Registry-based   Disease specific clinical database Outcome type (please select as many as appropriate)   Morbidity Diagnostic groups based on ICD10   C + D Neoplasms C + D Neoplasms   Mesothelioma Other health related outcomes   Lifestyle change Quality of life/wellbeing Work participation 6. Other Information   Alcohol Anthropometry Demographics Diet Education Environmental, air pollution Medical history Physical exercise Residential history Socioeconomic status Smoking Possibility for linkage to data registries/data enrichment via data linkage   Cancer incidence Mortality register